
I get to ring the bell today!!!

Writer, reader, rpg gamer (dnd5e & shadowrun,) dog mom, crafter, cancer WARRIOR (MBC) spoonie (Meniere's Disease) mobilityaid user
My hair was coming out in clumps, so my sweet hubby helped me shave my head yesterday. A friend’s son said, ” She looks like she’s ready to rock the apocalypse!” (That’s my favorite comment so far.)
Me and my crooked smile. But with very cute hats!!!
Yesterday was another long day at the hospital. It really tested poor Amos’ bladder.
I found out I was kicked out of the clinical trial. The cancer in my lymph nodes is not stable enough for me to continue to qualify. So my doc is switching me to a different chemo treatment once my full-brain radiation is done. Radiation ends Monday. New chemo starts Tuesday. Booted from clinical trial yesterday. The good news is that the cancer in my bones is stable. I am happy to hear that one, because that is the painful one.
I got a new physical therapist. He is MUCH better than the last one. Trent likes him better too. So hopefully my PT will go much easier from here on out. I found out I can request him each time. So that makes part of my life easier. I just think the guy is more gentle in general. Trent described the last lady as “combative”.
I am hoping to get some more writing done this week. Shorter days at the hospital should help with that.
Quick update on yesterday’s hospital visit.
It was such a long day. Full-brain radiation, stop in the lab, bone scan and CT, both with contrast, plus two infusions.
Everyone was so nice. We got out a little early too.
But I did experience what was very close to my worst nightmare. I fell (in front of) a public restroom. The only way it could have been worse if it was actually IN the restroom. I was icked out all day. But again, that is why I bring Purell wipes and other emergency stuff in my bathroom bag that I bring with me.
I was so tired by the end of the day (about 7 hours). My husband and I picked up fries at In N Out on the way home, which was a complete joy! I love car-fries! We eat the hot fries in the car on the way home. It is just heaven.
I have a very long day at the hospital today. I’d appreciate prayer and good thoughts. ❤